Here are many diseases related to blood that is, what should we say, incurable. When you first hear the word “incurable” your entire world starts to crash. This goes two-fold when it comes to the matter of hemophilia: a condition where the blood just flows with no sign of clotting.

This inherited disorder has been known to cause death as a result of nothing more than a prick from a twig. Just imagine life when even the slightest mishap with a sharp or a pointy object resulting in death. What life must that be?

However, it is time not to dwell upon the bad circumstance that this disease brings as with modern medicine and a regimen of strict exercise and focus, hematological treatment of this new age has made it possible to treat this disease to a certain extent.

Treating hemophilia

Now, to give you a general idea of hemophilia does- it reduces the bodies capacity to clot the blood to an exaggerated extent and sometimes, to absolute zero. Therefore, the goal of the treatment would be to add something to it that establishing the clotting process.

What is clotting?

When the body bleeds, a signal is sent and the platelets of the blood begin to lump together in the form of walls to plug the region of bleeding. This complex process starts up just when the bleeding is detected and once the clotting begins, the PT (Prothrombin Time) test suggests that the entire process of clotting takes around 25 to 30 seconds.

Now, in order to establish this “clotting” factor, external agents are needed, and that is the entire essence of treating hemophilia. That is why the therapy introduced for this is called the “factor infusion therapy”- to add or “infuse” the “factor” of clotting to the blood with the condition. There are two known approaches for the entire process

  1. On-demand therapy: Whenever the bleeding occurs, infusions are provided in order to stop the bleeding.  Now, depending upon the severity of the case, either one infusion would be enough for momentary treatment or the process can take whole days.
  2. Prophylaxis Therapy: In this approach, infusions are given to the patients (which are mostly children) once every week. This process is safer and it is used to prevent the possibility of bleeding out at all.

Managing hemophilia

Now, in hindsight, you can guess that even the treatments are a way to manage the hemophilic conditions and not to completely treat the condition. While these treatments are still going on, there are indeed other ways to manage the condition.

  1. Managing the pain:
    1. Acute Pain: This pain is short term and when happens when the blood that is bleeding outflows into a joint. Managing it can be done in following ways:
      1. Applying ice to the painful region.
      2. Using a pillow or anything that provides external pressure in order to numb the pain.
      3. Placebo options that can divert the attention from the pain.
    1. Chronic Pain:  A long-term pain caused due to repeated flowage of blood into that has damaged them permanently and also in a painful manner. Managing this includes:
      1. Painkillers which should be prescribed by the doctor himself.
      2. Using mobility devices in order to make sure that there is only a minimal movement in the legs.
      3. Exercise to manage the pain: exercising in safe conditions can also be helpful.

    Hemophilia, it is not far off to know that internal bleeding is also possible. When this internal bleeding flows in between the joints of the bones, pain is felt, and this can be categorized into the following two:

    1. Table Tennis
    2. Swimming
    3. Sailing
    4. Badminton
    5. Golf
    6. Cycling
    7. Bowling
    8. Fishing
    9. WalkingNow, when it comes to managing fitness using exercise during Managing the physical fitness:Hemolytic conditions, there are no doctors who prefer it. However, with a safe regimen, proper exercise would keep you healthy. Following are the sports that you can partake in f you are haemophilic:

The last two might appear to be a far cry from exercise but they are in actuality and can provide a haemophilic patient with a lot of levity.

  1.  Living with Managing the Mental fitness:
    1. Making them understand the value of self-acceptance:
      1. In adults, self-acceptance is a key to not just manage the titular condition, but also to live in a wise manner.
      2. Developing a better quality of life based on the understanding gained through self-acceptance.
      3. Keeping pushing the fact that Haemophilia is a physical condition, it doesn’t have to be a mental one.
    2. Finding a way to relax: There is a lot of stress that comes along with the realization of hemophilia. To that end, yoga and other methods of relieving stress are the factors to be accentuated upon.

    hemophilia is much more of self-conscious stigma if anything else. Therefore, it is necessary to have a positive mental attitude. Most of what we, as humans see as fun and courage involves a lot of risks. However, “risk” is something that a hemophilic won’t be able to afford.  What to do in this case? How to instill positive re-enforcement in such individuals:

Conclusion:

A hemophiliac individual does have some extra struggles added to their portfolio other than whatever life already beings around. However, Knowing about the condition, and managing it, would assist them in rising up from the social stigma and live a normal and happy life that they couldn’t have imagined.

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